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2008-9

23andWe Research was conceived as a way to create a grassroots genetics research movement. 23andMe members can directly contribute to genetics research by adding phenotype information via online surveys to their genetic information. In return, they enjoy the benefit of having their own information available to them (rare in traditional research) and are able to see how their results compared to the community at large.

The Parkinson's Research Community is an ongoing collaboration with the Parkinson's Institute, the Michael J. Fox Foundation, the National Parkinson's Foundation, and Patients Like Me. Patients sign up to be genotyped, log in to a modified version of the consumer product, take longitudinal surveys to track symptoms and medications, and are part of a specialized online community.

The Pregnancy Community was created to advance research in pregnancy health. Given that 1 in 8 pregnant women experience serious complications in their pregnancy, surprisingly little is known or researched about gestational health. Similar to the Parkinson's Community, the Pregnancy community has a portal page for managing surveys, accessing relevant genetic information, finding people within that community, and a forum for support.

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First page a Parkinson's Community member sees on login. This page functions as an activity checklist to get the member started. Since 23andMe's consumer product has very extensive offerings that span a number of topics in health and ancestry, this dashboard highlights content most relevant to a Parkinson's Community member.
Parkinson's Community Portal Page. This page acts as a dashboard highlighting the principal components of the research community: relevant surveys, the person's relevant genetic information, other community members, and forum. The design of the portal page was meant to serve as a general prototype that could be reused for additional research communities.
Detail of Surveys box on portal page. Surveys include a longitudinal survey for symptoms and medications and several supporting surveys. Members can take a survey, view results of previous surveys, or resume taking a survey from this box.
Messaging flow for the survey for tracking symptoms and medications. Since doctors and researchers found data tracked on a weekly basis to be the most relevant, the messaging was organized to encourage weekly updating of the survey. Should patients wish to take the survey more than once a week, they are shown a pop-up indicating that adding new survey information within a week will reset their record for that week.
Results page for the tracking survey for Parkinson's Community. The survey is broken into 6 sections, which the patient can quickly access through the links at the top of the page. Although the survey is quite long, patient feedback based on mobility indicated that scrolling was much preferred to clicking. Therefore the results pages have been optimized for relatively few clicks.
View of symptoms results display set to Month. The severity of symptoms is registered in both height and color, to be easily distinguishable. Color palette has been selected to be sensitive to limited color vision. Note: this depiction shows a lot of fluctuation in severity to illustrate the how the different symptoms would look. Actual patients would see much less fluctuation.
View of symptoms results display set to Year. The severity of symptoms is registered in both height and color, to be easily distinguishable. Color palette has been selected to be sensitive to limited color vision. Note: this depiction shows a lot of fluctuation in severity to illustrate the how the different symptoms would look. Actual patients would see much less fluctuation.
View of medications results. The visualization reflects the yes/no nature of the medications questions. Since patients may be taking several medications at once, this visualization helps record any overlap of medications over time.
At left, the portal page for the Pregnancy Community features an indidual's surveys, related health and traits data, other community members, and a related forum. At right, the Pregnancy Surveys page. Women who are currently pregnant can take the 40-week Survey, a longitudinal survey of pregancy symptoms. Pregnancy timeline is measured using the progress bar. Past surveys could be named after each child and are organized by child.
The survey interface was designed to be a quick and easy interaction. A progress bar at the top lets users know how far along they are. Layout features large text and the ability to add illustrations into the multiple choice selection where appropriate. Button graphics on-click appear to get squashed.
Detail of multiple choice selector with images. Rolling over and clicking any part of the horizontal highlighted band selected the radio button, which meant that clicking didn't require a high mousing proficiency.
Results visualization for quick snapshot surveys that lived within a health and traits article. Results were designed to be compact, sensitive to limited color vision, and visually appealing. They compare the user's results with the larger community results. The "Take Another Survey" button allowed users to quickly click to the next short survey, making it easy for users to fill out 5 or so surveys in one sitting.